Invest in ME - CURRENT and RECENT AWARENESS
EVENTS
Please contact us to support Invest in ME in our attempts to
raise awareness of ME.
Below are events which are taking place or have recently taken place.
Download our sponsorship form if you are planning fund-raising
events for IiME
-
click here.
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Invest in ME - FUNDRAISING and AWARENESS
92 in 92
2014 |
The world of ME has many hurdles - one of them being
isolation for patients. It is a too infrequent an
occurrence for friends of someone with ME to stay in
contact, let alone actively do something to help. Many ME
patients can feel isolated and abandoned by their friends
and even family members.
So we are amazed at the reaction and spirit of a group of
four friends who are aiming to visit all 92 English
Football League Stadiums in under 92 hours in support of
Invest in ME and to raise money and awareness for the
Rituximab Trial.
They are doing this to help their friend who
has ME.
The event begins on April 16th 2014. We are really grateful
for this group of four who are doing an amazing job
raising awareness before the event has even started.
Football clubs, hotels, TV companies have already shown
interest in this positive way of raising awareness and
funds for ME.
One can follow the news of this event here
http://92in92.blogspot.co.uk
and make donations to support the amazing event
click here
The charity has had a flag especially made for the tour and
this will be taken along and used for photo opportunities at
all of the clubs.
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The BIG Sleep for ME
May 2014 |

Julia Cottam is once again organising The
Big Sleep for ME event in May.
Julia and the team did a fabulous job last
year and this annual event is growing nicely and looks to
be a great event to be involved in during an ME Awareness
Week from 11th to 17th May.
You can read more about the
many ways to get involved here
http://www.thebigsleepforme.com
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Sample
Selection of Events and Schemes |
Walk for ME
This is the second year that Walk for ME event is being
organised and it is another great event for almost anyone
to take part. The website has a gallery of last year's
walks and gives easy to understand information how to get
involved. Those helping Invest in ME in this event will be
assured that all funds received are used for activities
for biomedical research into ME.
Find out more from the website here -
http://walkforme.co.uk/

Several active individual pages on Just Giving have been set
up to help IiME -
Bath
Marathon
Two entrants to the Bath half-marathon are raising funds
for IiME
Mark Webster is the son of ME patient Isabel Webster.
Mike's JustGiving page and story are at -Mark's
Bath Half Marathon 2014 page
Catherine Ellicott is running also - her JustGiving page is
at Cath's
Bath Half Marathon 2014 page. Already Catherine has
achieved an incredible total.
Our grateful thanks to Mark and Catherine on behalf of all
patients and carers.
London
Marathon
Stephen Cox will be the charity's first supporter running in
the London marathon on 13th April.
Stephen has set up a JustGiving page - http://www.justgiving.com/Stephen-Cox4
For a small charity such as Invest in ME it has always been
difficult having an entry in the London marathon as the
event seems geared for those charities who can afford to buy
places. So we are incredibly grateful to Stephen for
breaking the mold on this.
We would welcome any support in raising awareness of ME with
these marathon events.
Arctic Marathon
Marathons are no mean feat to accomplish
- for anyone.
An extreme way of raising awareness of ME
and much-needed funding for biomedical research into ME has
now been set in motion by Mike Shepherd. Mike is taking on
the North Pole Marathon.

As Mike writes on his web site -This is the
challenge of a lifetime and it is the result of my daughter
having ME since September 2008. I have seen firsthand how
damaging ME can be to a person's life, their prospects and
their family.
http://www.shepherdfitness.co.uk

Books on ME

MY A-Z OF M.E. (Myalgic Encephalomyelitis)
by Ros Lemarchand
Do you feel that no one understands you?
Do you feel alone with this illness?
Do you find it hard to express how you
feel?
Ros Lemarchand's book of poems about life
with M.E. is a must for you.
MY A-Z OF M.E. (Myalgic Encephalomyelitis)
is available in both Kindle and paperback editions
http://www.amazon.co.uk/.../dp/1492735116/ref=sr_1_6
Ros also has a YouTube video about the book -
click here
Can I Tell you about ME/Chronic Fatigue
Syndrome?

This book by Jac Rayner.
IiME chairman Kathleen McCall has reviewed the book for the
publisher and included the following comments -
"This book is very clear and easy to read.
It is a great resource that can be used by ME patients and
their carers to explain and inform others what it is like
to be affected by ME/CFS.
Not only children but adult relatives, friends and teachers
would learn a great deal from this book."
Available on Amazon
at this link
Jac's book is also to be translated into Norwegian.
Rafi Brown and the Candy Floss Kid

Sue Stern has raised over £1000 by taking a MATRIX slot and
donating proceeds to IiME from sales of her children's
novel last year - just a year ago.
One of Sue's sons has been severely affected by M.E. and
other related conditions for many years.
Her book has ISBN code 978-0-9574948-0-0.
Sue was interviewed by Kath, at Wythenshawe local radio, on
her programme, 'Disability Matters'.
As a result of her suggestion, I contacted the Royal
National Institute for the Blind, who are now making a
large-print version of the book, and when funds allow, a
Braille version!
Sue's MATRIX slot is
here -
click here

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Dog Therapy for ME - YODA |
Caroline Murphy's French bulldog, Yoda, is to be presented with an Endal, a prestigious doggie medal by Dogs Today magazine at Earls Court in London (at the London pet show) on the 12th of May for his services
in helping Caroline cope with M.E.
Caroline has had ME for 8 years and Yoda has helped
her manage her condition more easily.

Caroline wants to promote pets as a good
therapy and the media will be featuring this.
We are happy to help Caroline in raising awareness
of ME in this way.
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Lindsey's Weightloss Campaign
April 2012 |
I'm aiming to lose weight for IiME because too many people are suffering with no hope. Hi everyone. I have decided to sponsor my weightloss campaign in order to raise money for Invest in M.E. Their goal is to establish a UK centre for bio medical M.E research and treatment, based at the university of East Anglia in Norwich UK.

JustGiving page -
click here
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Peter Ross running the Brighton Marathon 2012
April 2012 |
This is a charity that can make a difference to a lot of people who don't make headlines, but can struggle in their day-to-day life. You can make a difference to research into treatments for an illness that affects 150,000 people in the UK alone. I will be running the Brighton Marathon in April 2012 with many friends and my brother, Mark, which will increase the competition and challenge. I won't be beaten by my older brother! Anything you can donate would be very special to me and I thank you in advance.


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Carole Fundraising at ASDA
March 2012 |
Carole Carrick at Asda Dunbar
Supermarket 30th March 2012 - collecting a total of £196.19 for
Invest in ME's Biomedical Research Fund - and also spreading
much needed awareness of ME.

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Mini Brighton Marathon 2012
March 2012 |
I am 10 years old, since I was 5 my mum has suffered with M.E and other illnesses. I want to raise money to help gain research in the UK which may help get treatment and maybe even one day, a cure.
It breaks my heart to see my mum suffering and in pain. We don't get to go out often like my friends do, but my mum does her best. I know it upsets her as I have seen her wiping away tears. When we do manage a day out, mum has to use a wheelchair, even then it tires her out for days, she catches viruses very easily too. All I want is my well mum back.
It upsets me to know children suffer this cruel illness. I know how lucky I am that I don't have it, so I will do what I can do to help not just my mum BUT children and adults suffering too.
THANK YOU FOR READING MY STORY- PLEASE DONATE WHAT YOU CAN, MANY OTHER CHILDREN ARE IN THE SAME POSITION AS ME... I AM RUNNING FOR YOU ALL!!!!!
I AM AMAZED AT THE DONATIONS I AM RECEIVING, THANKS SO VERY MUCH :) XXXXXX
PLEASE, IF YOU CANNOT DONATE, PLEASE SHARE MY STORY, REMEMBER WE NEED THE UK BIOMEDICAL RESEARCH CENTRE......


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An
Event to Raise Awareness of ME Through the Various 'Arts'
March 2012 |
Thank You for taking the time to visit my JustGiving page.
My 'pledge' is to raise more accurate awareness of ME/CFS & Fibromyalgia through my upcoming website & blog and to raise money for the InvestinME charity- especially during International Awareness Week starting May 11th where a friend & I (Katherine) I will be holding an Awareness through the Arts event in Canterbury, Kent.


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Nadine is giving up Facebook for Lent
March 2012 |
Nadine is giving up Facebook for Lent and wants to raise as much money as possible for a cause that is close to her heart and has kindly agreed to let me write this page for her. It's difficult to know what to write as I've not spoken to her for two years, well I didn't like to interrupt. Giving up Facebook is quite a sacrifice as it can be a life line for people who have an isolating illness like Nadine and she deserves your support.

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Dave and Tanya's Weight Loss Challenge
March 2012 |
Thank you for taking the time to visit our JustGiving fundraising page.
Our daughter Tara fell ill with M.E. in November 2010, when she was just 10 years old. Since then she has been unable to attend mainstream or medical school, resulting in our decision to de-register her and begin home-schooling ourselves. Our lives have dramatically changed since this illness, Tara never complains and always sees the bright side of any situation, no matter how hurt she feels inside.
She suffers from chronic pain, headaches, dizziness (blacking out on occasions), regular sore throats and swollen glands, nausea, noise sensitivity and can’t manage large social gatherings due to the sensory overload and exhaustion it causes. These are just a few of her symptoms – there are many more! Tara needs to take various medications to help her control her symptoms and misses life as it used to be.
For those of you who know Tara, you will remember she used to be such an active child. Always on the go, singing all the time and dancing her way around the house. She attended tap and modern dance lessons, musical theatre and also dance groups at school. Nowadays we use a wheelchair for when we go out as a family, as Tara can’t walk too far due to exhaustion and the pain it causes in her limbs and back. She struggles to sing and if she does it’s at a whisper as the strain of it hurts her throat. Although at the moment her activities and social life are limited and have to be managed very carefully she is able to maintain friendships.


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Annabel's Screen-Free Weekend
March 2012 |
Thanks for taking the time to visit my JustGiving page.
I would like to raise some coppers for a project close to my heart, the Let's do it for M.E campaign for Invest in M.E.
As most people know, I have had M.E now for 13 years. Approximately 250,00 people in the UK are believed to suffer from ME: a serious neuro-immune disease for which there is currently no cure and few effective treatments. It is a severe, complex, acquired illness with numerous symptoms related mainly to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. One in four sufferers are severely affected, bedridden or housebound, as a result of their condition whilst 10% of sufferers here in the UK are children.On Sunday 9th October 2011, Frances
Hiller will be running her first half marathon. Fran is raising
as much money as possible for Invest in ME.

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Rosemary's Tour of the Dengie
February 2012 |
My daughter Emily has been ill with ME for about three years now and it's impossible to get any medical help for her due to the lack of any biomedical research. Invest in ME "IiME" charity is trying to raise £75,000 to establish a research and treatment centre in Norwich. Please donate as much or as little as you can.

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Paul and Susie's Paris Marathon Page 2012
March 2012 |
Thanks for taking the time to visit our Marchy Marathon page. We want to raise money for Invest in ME. Here's why.
Approximately 250,000 people in the UK are believed to suffer from ME: a serious neuro-immune disease for which there is currently no cure and few effective treatments. One in four sufferers are severely affected or housebound as a result of their condition, whilst 10% of all the country's sufferers are children.
Some of those affected are unable to move, speak or swallow, but the most typical symptom of ME is post-exertional neuro-immune exhaustion. In these instances, a sufferer can become severely ill after carrying out even the most basic of mental or physical tasks - the effects of which can be felt for days or even weeks. ME, by its nature, is a fluctuating condition. The severity of these and other symptoms can wax and wane during any given day, week or month; and, over the years, sufferers may find themselves experiencing an unexpected number of remissions and relapses without any warning.
Previous studies have suggested that 80% of all sufferers from ME will never recover, they are more susceptible to other diseases such as cancer, and their life expectancy is twenty-four years less than the national average. And whilst there is a significant amount of scientific evidence and research into the disease and its effects, there is still no cohesive strategy for using this research to investigate effective and long-term treatments to help its sufferers.
There are charities out there who are willing to help, raising both awareness of the condition, and funding for future research. Invest in ME is one such charity within the UK, and every penny will go towards developing its most recent project: Let's Do It For ME!


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Dave's Paris Marathon 2012
February 2012 |
Thanks for taking the time to visit my JustGiving page.
I'll be helping to raise money for 'Let's Do It For ME', an awareness and fundraising campaign run by ME sufferers in close connection with the Charity Invest in ME.
ME is classified as a multi-systemic disease, and affects an estimated 250,000 people in the UK 25% of those are severely affected and 10% are children.
Some of those affected are unable to move, speak or swallow, but the most typical symptom of ME is post-exertional neuro-immune exhaustion. In these instances, a sufferer can become severely ill after carrying out even the most basic of mental or physical tasks - the effects of which can be felt for days or even weeks. ME, by its nature, is a fluctuating condition. The severity of these and other symptoms can wax and wane during any given day, week or month; and, over the years, sufferers may find themselves experiencing an unexpected number of remissions and relapses without any warning.
Patients with severe ME have been largely excluded from research and also from treatment, as services have not been developed to meet their special needs and lack of research means that doctors have no evidence-based treatments to offer them.


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Running for my sister ... praying for a cure
February 2012 |
hello all, my name is Laura ...
I am 31 and mum to my amzing daughter who is nearly 12, she makes my life complete everyday.
But this page and this journey im on is for my sister kerryn who is 33 and for the last 10 years has had the awful illness M.E!! for those of you that do not know the illness or don't understand it, or have heard rumours that it is all in the mind.. please take a moment to share my story from a loved ones side.
My sister first returned home from doing an Art degree in 1999, this was not by choice but due to the start of this illness that at this point we knew nothing about, all I knew as her sister was my incredible.. VERY TALENTED, full of life sister was now spending everyday in bed, wanting quiet and suffering terrible panic attacks. She suffered constant pains and getting through her day was minute by minute, not knowing what the day would hold.
After months of suffering and more doctors appointments that i care to remember, she finally saw a specialist and was diagnosed with M.E, at this point all we could do was research the illness and deal with the fate that she had been blown... I just wish everyone that questions this illness would read about it or ask us and not make the comments that to this day hurt and haunt our family.

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Scott's Scottish Marathon in May
February 2012 |
Thanks for taking the time to visit my JustGiving page.
Approximately 250,000 people in the UK are believed to suffer from ME: a serious neuro-immune disease for which there is currently no cure and few effective treatments. One in four sufferers are severely affected or housebound as a result of their condition, whilst ten percent of all the country's sufferers are children.
Some of those affected are unable to move, speak or swallow, but the most typical symptom of ME is post-exertional neuro-immune exhaustion. In these instances, a sufferer can become severely ill after carrying out even the most basic of mental or physical tasks - the effects of which can be felt for days or even weeks. ME, by its nature, is a fluctuating condition. The severity of these and other symptoms can wax and wane during any given day, week or month; and, over the years, sufferers may find themselves experiencing an unexpected number of remissions and relapses without any warning.


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Carole Fundraising at ASDA
December 2011 |
Carole and Clive Carrick were
fundraising for IiME biomedical research at ASDA in Berwick Upon
Tweed in December 2011.

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Half-Marathon
October 2011 |
On Sunday 9th October 2011, Frances
Hiller will be running her first half marathon. Fran is raising
as much money as possible for Invest in ME.
Fran's husband has suffered from ME/CFS for
over a decade. It's an illness that is still poorly understood,
and there is a great deal of misinformation and prejudice
surrounding it. Invest in ME campaigns for and funds biomedical
research, which is desperately needed. The charity is run
entirely by volunteers, so all money raised goes directly to
biomedical research.

Everyclick
page click here
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Tony Lobo's Marathon Run for Invest in ME (Myalgic
Encephalomyelitis)
Do you want to
help us make this big idea a reality? |
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Three Peaks Challenge
August 2011 |
3 Peaks, 3 Countries in 24 hours! Please support
Richard Wood in trying to raise as much money as possible for
Invest in ME. Myalgic Encephalomyelitis (M.E.), is an
under-researched illness that affects so many people's lives in
different ways

Everyclick
click here
Further information -
http://www.thethreepeakschallenge.co.uk
Do you want to
help us make this big idea a reality? |
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The Cotswold Way, Cotswolds
August 2011 |
Wanted: Hikers to accompany
Will David on a sponsored hike. This will be carried out in
August bank holiday weekend from Bath to the Northern Point of
the Cotswolds - the Cotswold Way. This is approximately 100
miles. Will needs other IiME supporters to help in raising funds for
Invest in ME's Biomedical Research Fund which supports biomedical research into ME.
Please contact Invest in ME if
interested.

A little to the north and
east of the Severn Estuary, within comfortable reach of London,
the Cotswolds is an area of gentle hills and valleys. With its
picturesque villages in their yellow local stone, it is commonly
thought to be the essentially English region. The Cotswold Way
was designated a local distance footpath in 1970 and a National
Trail in 1998. It runs along the western escarpment, starting
close to Shakespeare's Stratford and finishing in Bath.
More info
click here
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Last Updated:
22/03/2014
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