More Information:

http://92in92.blogspot.co.uk/

 

JustGiving Page:

http://www.justgiving.com/Mike-Harley2

 

 

Julia Cottam is once again organising The Big Sleep for ME  event in May.

Julia and the team did a fabulous job last  year and this annual event is growing nicely and looks  to be a great event to be involved in during an ME Awareness  Week from 11th to 17th May.

You can read more  about the many ways to get involved here  http://www.thebigsleepforme.com   

 

 

Inspired by a £1000 donation to the UK Rituximab Treatment Trial JustGiving page, the Let's do it for ME team have come up with an idea to help raise awareness and funds for this important biomedical research into understanding and finding effective treatments for ME. The aim of the Matrix project is to help to raise as much as possible of the £350,000 required to fund this trial by inviting 100 pledges to raise or donate £1000 each. More Details - http://www.ukrituximabtrial.org/IIMEUKRT%20Matrix.htm

 

Our friends in the LDIFME site have more details

 

Walk for ME This  is the second year that Walk for ME event is being organised  and it is another great event for almost anyone to take  part. The website has a gallery of last year's walks and  gives easy to understand information how to get involved.  Those helping Invest in ME in this event will be assured  that all funds received are used for activities for  biomedical research into ME. Find out more from the website here - http://walkforme.co.uk/  Several active individual pages on Just Giving have been set up to help IiME - Bath Marathon Two entrants  to the Bath half-marathon are raising funds for IiME Mark Webster is the son of ME patient Isabel  Webster. Mike's JustGiving page and story are at -Mark's  Bath Half Marathon 2014 page Catherine Ellicott is running also - her JustGiving page is at Cath's Bath Half Marathon 2014 page. Already Catherine has achieved an incredible total. Our grateful thanks to Mark and Catherine on behalf of all patients and carers.   London Marathon Stephen Cox will be the charity's first supporter running in the London marathon on 13th April. Stephen has set up a JustGiving page - http://www.justgiving.com/Stephen-Cox4 For a small charity such as Invest in ME it has always been difficult having an entry in the London marathon as the event seems geared for those charities who can afford to buy places. So we are incredibly grateful to Stephen for breaking the mold on this. We would welcome any support in raising awareness of ME with these marathon events.   Arctic  Marathon Marathons are no mean feat to accomplish  - for anyone. An extreme way of raising awareness of ME  and much-needed funding for biomedical research into ME has now been set in motion by Mike Shepherd. Mike is taking on the North Pole Marathon.  As Mike writes on his web site -This is the challenge of a lifetime and it is the result of my daughter having ME since September 2008. I have seen firsthand how damaging ME can be to a person's life, their prospects and their family. http://www.shepherdfitness.co.uk   Books on ME MY A-Z OF M.E. (Myalgic Encephalomyelitis)  by Ros Lemarchand  Do you feel that no one  understands you?  Do you feel alone with this illness?  Do you  find it hard to express how you feel?  Ros Lemarchand's  book of poems about life with M.E. is a must for you. MY  A-Z OF M.E. (Myalgic Encephalomyelitis) is available in both Kindle and paperback editions http://www.amazon.co.uk/.../dp/1492735116/ref=sr_1_6 Ros also has a YouTube video about the book  - click here        Can I Tell you about ME/Chronic Fatigue Syndrome? This  book by Jac Rayner. IiME chairman Kathleen McCall has reviewed the book for the publisher and included the following comments - "This book is very clear and easy to read.  It is a great  resource that can be used by ME patients and their carers to  explain and inform others what it is like to be affected by  ME/CFS.  Not only children but adult relatives, friends and  teachers would learn a great deal from this book."   Available on Amazon at this link   Jac's book is also to be translated into Norwegian.   Rafi Brown and the Candy Floss Kid Sue Stern has raised over £1000 by taking a  MATRIX slot and donating proceeds to IiME from sales of her  children's novel last year - just a year ago. One of Sue's sons has been severely affected  by M.E. and other related conditions for many years. Her book has ISBN code 978-0-9574948-0-0. Sue was interviewed by Kath, at Wythenshawe local radio, on her programme, 'Disability Matters'.  As a result of her suggestion, I contacted the Royal National Institute for the Blind, who are now making a large-print version of the book, and when funds allow, a Braille version! Sue's MATRIX slot is here - click here

 

Caroline Murphy's French bulldog, Yoda, is to be presented with an Endal, a prestigious doggie medal by Dogs Today magazine at Earls Court in London (at the London pet show) on the 12th of May for his services in helping Caroline cope with M.E.

Caroline has had ME for 8 years and Yoda has helped her manage her condition more easily.

Caroline wants to promote pets as a good therapy and the media will be featuring this.

We are happy to help Caroline in raising awareness of ME in this way.

 

I'm aiming to lose weight for IiME because too many people are suffering with no hope. Hi everyone. I have decided to sponsor my weightloss campaign in order to raise money for Invest in M.E. Their goal is to establish a UK centre for bio medical M.E research and treatment, based at the university of East Anglia in Norwich UK.

JustGiving page - click here 

 

This is a charity that can make a difference to a lot of people who don't make headlines, but can struggle in their day-to-day life. You can make a difference to research into treatments for an illness that affects 150,000 people in the UK alone. I will be running the Brighton Marathon in April 2012 with many friends and my brother, Mark, which will increase the competition and challenge. I won't be beaten by my older brother! Anything you can donate would be very special to me and I thank you in advance.

 

I am 10 years old, since I was 5 my mum has suffered with M.E and other illnesses. I want to raise money to help gain research in the UK which may help get treatment and maybe even one day, a cure. It breaks my heart to see my mum suffering and in pain. We don't get to go out often like my friends do, but my mum does her best. I know it upsets her as I have seen her wiping away tears. When we do manage a day out, mum has to use a wheelchair, even then it tires her out for days, she catches viruses very easily too. All I want is my well mum back. It upsets me to know children suffer this cruel illness. I know how lucky I am that I don't have it, so I will do what I can do to help not just my mum BUT children and adults suffering too.

THANK YOU FOR READING MY STORY- PLEASE DONATE WHAT YOU CAN, MANY OTHER CHILDREN ARE IN THE SAME POSITION AS ME... I AM RUNNING FOR YOU ALL!!!!! I AM AMAZED AT THE DONATIONS I AM RECEIVING, THANKS SO VERY MUCH :) XXXXXX PLEASE, IF YOU CANNOT DONATE, PLEASE SHARE MY STORY, REMEMBER WE NEED THE UK BIOMEDICAL RESEARCH CENTRE...... 

 

Thank You for taking the time to visit my JustGiving page.

My 'pledge' is to raise more accurate awareness of ME/CFS & Fibromyalgia through my upcoming website & blog and to raise money for the InvestinME charity- especially during International Awareness Week starting May 11th where a friend & I (Katherine) I will be holding an Awareness through the Arts event in Canterbury, Kent.

 

Nadine is giving up Facebook for Lent and wants to raise as much money as possible for a cause that is close to her heart and has kindly agreed to let me write this page for her. It's difficult to know what to write as I've not spoken to her for two years, well I didn't like to interrupt. Giving up Facebook is quite a sacrifice as it can be a life line for people who have an isolating illness like Nadine and she deserves your support.

 

 

Thank you for taking the time to visit our JustGiving fundraising page.

Our daughter Tara fell ill with M.E. in November 2010, when she was just 10 years old. Since then she has been unable to attend mainstream or medical school, resulting in our decision to de-register her and begin home-schooling ourselves. Our lives have dramatically changed since this illness, Tara never complains and always sees the bright side of any situation, no matter how hurt she feels inside.

She suffers from chronic pain, headaches, dizziness (blacking out on occasions), regular sore throats and swollen glands, nausea, noise sensitivity and can’t manage large social gatherings due to the sensory overload and exhaustion it causes. These are just a few of her symptoms – there are many more! Tara needs to take various medications to help her control her symptoms and misses life as it used to be. For those of you who know Tara, you will remember she used to be such an active child. Always on the go, singing all the time and dancing her way around the house. She attended tap and modern dance lessons, musical theatre and also dance groups at school. Nowadays we use a wheelchair for when we go out as a family, as Tara can’t walk too far due to exhaustion and the pain it causes in her limbs and back. She struggles to sing and if she does it’s at a whisper as the strain of it hurts her throat. Although at the moment her activities and social life are limited and have to be managed very carefully she is able to maintain friendships.

 

Thanks for taking the time to visit my JustGiving page.

I would like to raise some coppers for a project close to my heart, the Let's do it for M.E campaign for Invest in M.E. As most people know, I have had M.E now for 13 years. Approximately 250,00 people in the UK are believed to suffer from ME: a serious neuro-immune disease for which there is currently no cure and few effective treatments. It is a severe, complex, acquired illness with numerous symptoms related mainly to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. One in four sufferers are severely affected, bedridden or housebound, as a result of their condition whilst 10% of sufferers here in the UK are children.On Sunday 9th October 2011, Frances Hiller will be running her first half marathon. Fran is raising as much money as possible for Invest in ME.

 

My daughter Emily has been ill with ME for about three years now and it's impossible to get any medical help for her due to the lack of any biomedical research. Invest in ME "IiME" charity is trying to raise £75,000 to establish a research and treatment centre in Norwich. Please donate as much or as little as you can.

 

Thanks for taking the time to visit our Marchy Marathon page. We want to raise money for Invest in ME. Here's why.

Approximately 250,000 people in the UK are believed to suffer from ME: a serious neuro-immune disease for which there is currently no cure and few effective treatments. One in four sufferers are severely affected or housebound as a result of their condition, whilst 10% of all the country's sufferers are children. Some of those affected are unable to move, speak or swallow, but the most typical symptom of ME is post-exertional neuro-immune exhaustion. In these instances, a sufferer can become severely ill after carrying out even the most basic of mental or physical tasks - the effects of which can be felt for days or even weeks. ME, by its nature, is a fluctuating condition. The severity of these and other symptoms can wax and wane during any given day, week or month; and, over the years, sufferers may find themselves experiencing an unexpected number of remissions and relapses without any warning. Previous studies have suggested that 80% of all sufferers from ME will never recover, they are more susceptible to other diseases such as cancer, and their life expectancy is twenty-four years less than the national average. And whilst there is a significant amount of scientific evidence and research into the disease and its effects, there is still no cohesive strategy for using this research to investigate effective and long-term treatments to help its sufferers. There are charities out there who are willing to help, raising both awareness of the condition, and funding for future research. Invest in ME is one such charity within the UK, and every penny will go towards developing its most recent project: Let's Do It For ME!

 

Thanks for taking the time to visit my JustGiving page.

I'll be helping to raise money for 'Let's Do It For ME', an awareness and fundraising campaign run by ME sufferers in close connection with the Charity Invest in ME. ME is classified as a multi-systemic disease, and affects an estimated 250,000 people in the UK 25% of those are severely affected and 10% are children. Some of those affected are unable to move, speak or swallow, but the most typical symptom of ME is post-exertional neuro-immune exhaustion. In these instances, a sufferer can become severely ill after carrying out even the most basic of mental or physical tasks - the effects of which can be felt for days or even weeks. ME, by its nature, is a fluctuating condition. The severity of these and other symptoms can wax and wane during any given day, week or month; and, over the years, sufferers may find themselves experiencing an unexpected number of remissions and relapses without any warning. Patients with severe ME have been largely excluded from research and also from treatment, as services have not been developed to meet their special needs and lack of research means that doctors have no evidence-based treatments to offer them. 

 

Thanks for taking the time to visit my JustGiving page. Approximately 250,000 people in the UK are believed to suffer from ME: a serious neuro-immune disease for which there is currently no cure and few effective treatments. One in four sufferers are severely affected or housebound as a result of their condition, whilst ten percent of all the country's sufferers are children. Some of those affected are unable to move, speak or swallow, but the most typical symptom of ME is post-exertional neuro-immune exhaustion. In these instances, a sufferer can become severely ill after carrying out even the most basic of mental or physical tasks - the effects of which can be felt for days or even weeks. ME, by its nature, is a fluctuating condition. The severity of these and other symptoms can wax and wane during any given day, week or month; and, over the years, sufferers may find themselves experiencing an unexpected number of remissions and relapses without any warning.

 

Carole and Clive Carrick were fundraising for IiME biomedical research at ASDA in Berwick Upon Tweed in December 2011.

 

 

On Sunday 9th October 2011, Frances Hiller will be running her first half marathon. Fran is raising as much money as possible for Invest in ME.

Fran's husband has suffered from ME/CFS for over a decade. It's an illness that is still poorly understood, and there is a great deal of misinformation and prejudice surrounding it. Invest in ME campaigns for and funds biomedical research, which is desperately needed. The charity is run entirely by volunteers, so all money raised goes directly to biomedical research.

Everyclick page click here 

 

Click on the image below

 

 

Click on the image below

 

 

Click on the image below

 

 

3 Peaks, 3 Countries in 24 hours! Please support Richard Wood in trying to raise as much money as possible for Invest in ME. Myalgic Encephalomyelitis (M.E.), is an under-researched illness that affects so many people's lives in different ways

Everyclick click here 

Further information - http://www.thethreepeakschallenge.co.uk

Do you want to help us make this big idea a reality?

 

Wanted: Hikers to accompany Will David on a sponsored hike. This will be carried out in August bank holiday weekend from Bath to the Northern Point of the Cotswolds - the Cotswold Way. This is approximately 100 miles. Will needs other IiME supporters to help in raising funds for Invest in ME's Biomedical Research Fund which supports biomedical research into ME.

Please contact Invest in ME if interested.

A little to the north and east of the Severn Estuary, within comfortable reach of London, the Cotswolds is an area of gentle hills and valleys. With its picturesque villages in their yellow local stone, it is commonly thought to be the essentially English region. The Cotswold Way was designated a local distance footpath in 1970 and a National Trail in 1998. It runs along the western escarpment, starting close to Shakespeare's Stratford and finishing in Bath.

More info click here