At the age of 15 I had a very bad case of Glandular Fever which looking back
now I know was the start of my M.E.
I would say that the M.E started off quite moderately. I suffered with
feeling as I had with the Glandular Fever, only with worsening symptoms!
Now at 35 I'm 99% bedridden, I am paralysed down the right hand side and in
both legs. I am incontinent and have a supapubic catheter fitted through my
stomach into my bladder.
Four years ago, I was forced to go into an old people's Nursing home as we
didn't have enough room downstairs for me to have a bedroom where I could be
hoisted. Therefore my O.T. involved a man from disability grants who agreed to
fund the building of an extension in which I have a ceiling track hoist, as I
can't transfer myself at all, that takes me from my small bedroom into an
en-suite shower room & Closomat toilet.
I spent 2 years in the nursing home while this was being completed where I
I have between 35-40 symptoms related to M.E including an immune deficiency.
Chemical sensitivity disorder, brain fog etc...
I am a member of the 25% M.E group who are the only support group for the one
quarter of all M.E sufferers who have severe M.E
Somedays I feel so ill that I want to go to sleep and never wake up !!!