The 3rd
International ME/CFS Conference 2008 took place on 23rd May
2008 in London and was attended by presenters and delegates
from 13 countries, from Europe, USA, Australia, New
Zealand and South
Korea.
See the
IiME Press
Release for biomedical research.
Invest
in ME would like to thank all those who took part in the
conference for contributing to the wonderful atmosphere
which was present during the conference.
The theme of the conference was Sub Grouping
and Treatments for ME/CFS. After last year's
conference the message went out that we
needed data to prove the organic nature of
this disabling physical illness. The 2008
conference provided that data.
The 3rd IiME International ME/CFS conference
was our best yet. This year the chair was
performed superbly by Professor Malcolm
Hooper whose minimal but expert
interventions kept the event on schedule
with minimum interruption and thus enabled
the conference to flow and maximise the time
given to each of our presenters.
The
atmosphere at the conference again showed the positive and
forward-looking side of the ME community around the world -
patients, carers and researchers who want to get better, who
continue to campaign for better education and who are
determined to find preventions, treatments or cures for this
debilitating neurological illness. The intention to educate
and publicise the need for sub grouping and treatments was
proven to be correct as the experts presented their data showing clear
subtypes of this illness.
And
then there were the presentations from our distinguished
speakers. An amazing amount of knowledge was presented
showing the organic nature of myalgic encephalomyelitis.
A full
review of the conference may downloaded
from here.
Now the
challenge is for the Chief Medical officer, the Medical
Research Council and the government to take up the challenge
laid down by the conference and commit to a national
strategy of biomedical research into ME, without any
conditions or provisions for enforcing the psychosocial
model to be incorporated. The conference clearly showed that
we do not need to
perform research in collaboration with the psychiatric
lobby in order to gain access to funding from the MRC. After
looking at the evidence presented by Drs Lerner, Jason, Chia,
Newton, Kerr, and experiences of Drs Monro and Spurr, and
after seeing the exciting and dynamic presentation of
research from Dr Mikovits showing what can and will be
achieved then the examination of relationships between valid
and proven biological markers (as in the conference) and
generic, unproven and sometimes deleterious treatments (as
advocated by NICE and the psychiatric lobby) is doomed to
failure and unnecessary delays in providing real treatments
and a cure for ME. As Dr Lerner said at the conference
-
Treatments (for some sub types) are already there.
Invest in ME has passed on an invitation
from Mrs Annette Whittemore of the
Whittemore-Peterson Institute for
Neuro-Immune Diseases in Nevada, USA, to the CMO, the MRC,
the Secretary of State for Health and health
minister Mrs Ann Keen to visit the institute
in the next 6-8 months to look at the plans
and strategies being developed for biomedical research into ME. Mrs Whittemore
has also extended an invitation to for these
same people to attend the opening of the WPI
in 2010.
>>
Click here for the text of these letters
(CMO
example)
<<
From our
point of view one of the most enjoyable aspects of the
conference was the networking which occurred and the
possibility of putting people with ME or their carers in
direct contact with our presenters, enabling them to get
answers or information for their personal set of
circumstances.
Invest
in ME published its third Journal of IiME [click here]
prior to the conference. A supplement to the
Journal also
served as a conference brochure and that is now available [click
here].
Please
use the links above to branch to different aspects of the
conference. We will add more data over the next few days.
We do
value and appreciate all the comments and feedback which we
received and we shall use these to attempt to improve the
conference for 2009.
Invest
in ME have produced a
DVD,
containing
the
complete presentations at the conference,
which can be
ordered here.
The
presentations are available and
included on the conference DVD, as they were on last
year's DVD -
available here.
This
conference was dedicated to the work and
memory of Dr John Richardson whose
dedication to those suffering from ME is
still evident today in the work of the
John Richardson Research group whose
chairman, Dr Irving Spurr, was a founder
member of the group and was speaking at
the conference.
Many
thanks for all of the support we received.
Best
Wishes from all at Invest in ME
Support ME Awareness
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