Invest in ME Campaigning Items

Support ME Awareness - Invest in ME

 

A look at the completed or ongoing campaigns which Invest in ME has begun.

If you have an entry to go here or wish to organise an event/discussion please contact us so we can include it.

 

November 2013 - Health and Human Services’ Contract with the Institute of Medicine to Create New definition of ME and CFS

IiME's comments on the IOM contract to redefine ME.

Click here to see details.
 

October 2013 - Comments on NICE Plan for Shelving ME Guidelines

In December 2012 the NICE Board agreed that a new programme for reviewing clinical guidelines should be developed. IiME commented here.

Click here to see details.
 

March 2013 - Meeting with Dr Martin McShane

Recently Invest in ME were able to meet with Dr Martin McShane – NHS Commissioning Board Authority, Director - Domain 2- Improving the quality of life for people with Long Term Conditions).

Click here to see details.
 

August 2011 - Letter to the RCGP Journal

In Invest in ME's view the RCGP guidelines contain potentially dangerous and negligent views about this disease. IiME have written to the author of an article in the RCGP journal.

Click here to see details.
 

June 2011 - IiME Input to APPG Meeting on Children

Invest in ME has supplied the following to Annette Brooke, chair of the APPG for ME in advance of the APPG meeting on 22nd June 2011.

Click here to see details.
 

May 2011 - ME Awareness Month

BURST OUR BUBBLE Campaign

Click here to see details.
 

May 2011 - ME Awareness Month

IiME arrange for MPs to meet with presenters at IIMEC6

Click here to see details.
 

May 2011 - Letter to the Lancet

Ignorance is not an option. Letter to Editor of the Lancet

Click here to see details.
 

May 2011 - ME Conference 2011

Invest in ME announce the 6th IiME International ME Conference 2011

Click here to see details.
 
IiME CAN DO Biomedical Research Fund

A research fund established by Invest in ME to fund biomedical research into ME and education and equipment costs to support biomedical research.

Click here to see details.
 
Letters to the CMO (2006 - 2010)

A ongoing campaign (originally started in 2005) to seek the support of every MP in the country in funding biomedical research into ME and raising awareness of ME.

Click here to see details.
 

May 2010 - ME Conference 2010

Invest in ME announce the 5th IiME International ME Conference 2010

Click here to see details.
 

APPG on ME
 

IiME contributions to the APPG on ME

click here

 

February 2009 NICE -What's Next?
 

IiME comment on the recent Judicial review of NICE brought by ME patients. click here

Calendar of the Chronically-Ill -
click here

 
November (2005 - 2010) - Me and My MP

A ongoing campaign (originally started in 2005) to seek the support of every MP in the country in funding biomedical research into ME and raising awareness of ME.

Click here to see details.
 

May 2009 - ME Conference 2009

Invest in ME announce the 4th International IiME ME Conference 2009

Click here to see details.
 

February 2009 - Sponsor a Book Appeal

Help us reach every GP, MP and media person by sponsoring a Lost Voices book. Invest in ME will send a book to every person sponsored with a personal note to the recipient stating who has sent the book and why.

Click here to see details.
 

May 2008 - ME Conference 2008

Invest in ME announce the 3rd International IiME ME Conference 2008

Click here to see details.
 

October 2008 - NICE Guidelines

A response to the published NICE guidelines for ME.

Click here to see details.
 

May 2007 - ME Conference 2007

Invest in ME announce the 2nd International IiME ME Conference 2007

Click here to see details.
 

Status of ME/CFS 2007

From the January Newsletter - IiME takes a look at the status of ME at the beginning of 2007.

Click here to see details.
 

October 2006 - NICE Guidelines

A response to the proposed NICE guidelines.

Click here to see details.
 

July 2006 - ME as a Notifiable Illness in Schools

A campaign to better inform schools of ME and make it a notifiable illness.

Click here to see details.
 

May 2006 - ME Conference 2006

Invest in ME announce the ME Conference 2006.

 Click here to see review.
 
January 2006 - Race Against TiME

Invest in ME - a campaign for ME Awareness MONTH

Click here to see details.
 
January 2006 - FINE Trials - for whose benefit?

The FINE trials - who are they really aimed at helping?

Click here to see details

 
October 2005 - Encephalopathy - or Apathy

A viewpoint on changing the underlying name of ME from Myalgic Encephalomyelitis.

Click here to see details.

July 2005 - Open letter regarding new Hampshire ME Clinics

Kathleen has written an open letter to 200 persons in the Hampshire regarding the  area regarding the Dorset ME Clinic, which the Hampshire ME Clinic proudly claims to be based on.

Click here to read the letter.

Following on from both the letter below and the radio interview that IiME took part in Kathleen received emails and telephone calls from people who have experienced the Dorset Clinic.
Click here
to read one of those experiences
.

 

Last Updated: 31 January, 2014


 

 

 

Support ME Awareness - Invest in ME

Last Updated: 31 January, 2014