Welcome to INVEST in ME (Research)

Centre of Excellence for ME

International ME Colloquium and Conference 2017

10  Years of Invest in ME (Research)

Who we are
We are an independent UK charity campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.), as defined by WHO-ICD-10-G93.3.
We have links nationwide and also internationally. Invest in ME are one of the founding members of
The European ME Alliance.

Our aim is to bring together like-minded individuals and groups to campaign for research and funding to establish an understanding of the Aetiology (causes), Pathogenesis (harmful effects) and Epidemiology (the pattern of distribution of a disease through a population) of M.E. This should lead to the development of a universal "thumb-print" test for diagnosis of M.E. and, subsequently, medical treatments to cure or alleviate the effects of the illness.

Invest in ME want to establish a national strategy of biomedical research into M.E. and establish a UK and European Centre of Excellence for biomedical research into M.E.

Please help make M.E. an illness which is properly understood and where adequate funding is provided for biomedical research into ME allowing treatments and cures  to be found.

"Possibly the two most important research projects for ME in the UK

The ME Information Centre
We wish to make this an easy destination to visit to find out anything about M.E. that you would like to know. Whether you are a sufferer, a parent/carer, a person involved in the media (see our Media pages) or somebody who would like to know more then visit our Information Centre for an insight into ME.

The column on the right covers other news items and includes an archive for all items posted here.

The Tragedy of ME
The effects of ME are apparent to any M.E. sufferer and their carers/parents.  Here is a sample of stories from M.E. sufferers which illustrates the sadness, and the reality, behind this illness. It also shows the positive approach of M.E. sufferers and serves to dispel any notions of depression as a causative feature of M.E., something which often accompanies many of the less-informed handouts given to, or by, the media and some organisations.
The Story Gallery - shows some of the tragic but hopeful stories concerning M.E.

Can you Help?
If you suffer from M.E. then we invite you to support us - we are sufferers and carers of ME sufferers ourselves - contact us now for more information on how we can work together to make a difference.
If you are a parent of a child with M.E. then we know what you are going through - help us to help you to do more than just cope.
The contacts page allows us to know about you.
Also - sign up for our newsletter - click here for more details.
Also ways to help and support Invest in ME - click here

There is no monopoly on a good idea to raise funds for biomedical research - go to our Ideas Factory page and contact us with your idea.
If you want to browse more use our site map to show which sections we have and so limit the effort required to find some information.

Use our ME-bay to auction and fund biomedical research into ME. See our IiME store area.


A Centre of Excellence for ME
Statement from Invest in ME
New paper published by IiME-funded students at UEA/IFR.
IiME Write to MRC Again
BRMEC7 and IIMEC12 conference events 2017 announced
Order IIMEC11 2016 Conference DVD
Ten years as a Charity
IiME submission to APPG for ME Mar 2016
IiME Write to MRC/Lancet on PACE Trial
Restating Position on PACE Trial
European ME Research Group EMERG members win funding from EU
Letter to the Lancet - PACE
Christmas Cards 2015
Articles from Dr David Bell
New £50k pledge of funds for rituximab/B-cell research
Mady Hornig in Norwich
The Big Give For the BIG Cause - Christmas Challenge 2015
Science, Politics and ME - A Book by Dr Ian Gibson
IIME Conference Trailer
IIME Proposal for CofE
Take the ChilliChallenge for IiME Research
Invest in ME Letter to The Times
Progressing Biomedical Research in Europe - RME
Matchstick Campaign for ME Awareness
Running 28 European Marathons - in the name of Friendship
Participation in IiME Research
Support for IiME Research
Let's March on a Million!
IiME Evaluation of IOM Report
Latest research from Columbia
IiME Press Release - 1/2 million
IiME Submission to NIH P2P Draft Workshop
ME/CFS – Through The Eyes of a Young Researcher
Complaint to BBC on Unbalanced Reporting
IiME January Newsletter
IiME Celebrates Donation from the Galaxy Hot Chocolate Fund
A Patient's View
Christmas Cards for 2014
Update on microbiome project
Update on IiME/UCL rituximab trial project
September Newsletter published
BRMEC4 Summary for GPs
Letter from America
Journal of IiME
Conference DVD 2014
92 football clubs in 92 hours

The Big Break 2014 - thanks for helping us win the top prize

Karina Hansen
IiME Response to IOM Contract
IiME Response to NICE Review
The Right Stuff
Happy Birthday LDIFME
Severe ME - notes from researchers
A Funny Old World - Medicine and ME
A Tale of Two Collaboratives
IiME Meeting with CCG Director for Commissioning
New Awareness Ad in London
ME/CFS/Pituitary Awareness - Christine's Legacy
ME Carer's Story - Lili
Human Enteroviruses and Chronic Infectious Disease
The BIG Cause - IiME Proposal

IiME GP Information packs to Scotland

To see the archive of past news items

ME INFO CENTRE Information & articles on ME. Latest -
Why ME/CFS may kill you:  Cardiovascular disorders in ME/CFS
Interstitial cystitis and CFS
More evidence of inflammation in ME
Why ME/CFS may kill you:  Cardiovascular disorders in ME/CFS
The role of viruses in ME
CBT/GET Ineffective for ME


ME RESEARCH Details of biomedical research into ME. Latest -
IiME/UEA - Our foundation research project
Bond University receive  $800,000 for research to identify cause/treatment of ME
Double-blind, placebo-controlled phase II study of Rituximab
ME is (bio)logically explainable
Using Cardiopulmonary Exercise Testing to Evaluate Post-Exertional Malaise in ME/CFS
International Science Symposium ME/CFS
Chronic Fatigue Syndrome after Q fever
Dr Lerner - management of glandular fever and sequelae
Critique on model for ME/CFS put forward by Harvey and Wessely in BMC
Dr Julia Newton - Orthostatic symptoms predict functional capacity in CFS
Dr Jonathan Kerr - Microbial infections in eight genomic subtypes of ME


CAMPAIGNING Details of past ME awareness campaigns.
IiME submission to APPG for ME Mar 2016
IiME Response to IOM Contract
IiME organise IIMEC6 researchers visit to Parliament
Letters to the DoH
Letters to the CMO
IiME supporter arranges Adjournment Debate in parliament
Letter to the PM from IiME
Response to CDC 5-year plan
Calendar of Chronically Ill
Nice - What's Next?



FUNDRAISING A page on fundraising activities and awareness events to support Invest in ME.
Let's Do It for ME
IiME win Direct Debit first prize
Current Events
Past Events
Ways to Support IiME


From the IiME Conference 2006 DVD - Severe ME as shown from Norwegian TV channel NRK's Puls programme.

IiME and Meridian ITV join forces to publish the Meridian interview of ME patients. ME as it is - one of the best media pieces on ME. Click here.



A blend of research, science, facts, politics and real-life experiences relating to ME/CFS.


LOST VOICES Lost Voices - From a Hidden Illness


GUIDELINES  £1.75p each(+p&p)
Invest in ME have been given the rights to distribute the Canadian Consensus Guidelines in the UK - click on image. Contact IiME to purchase.